March 03, 2006
Good Report
I just got home from my appointments at Hopkins. There was again some waiting involved, but it was not as bad as before. So, to the meat of it... My CT scan was normal, and my bloodwork was also normal, so though I cannot officially be declared "cancer free" until after radiation therapy, I'm close if not there now. Radiation will take place in order to fry any microscoping remnants that may or may not have spread into the lymph nodes in my back.
I see Dr. Song, a radiologist, on Monday and am going to investigate the possibility of having it done closer to home. There is a healthy difference between a 20 minute drive and an hour drive, so I am hoping it will not be a problem for that to occur. I may also find out at this appointment how often I need to be checked over the next five or so years. The urologist wants to see me back in a year, which is substantially later than I had imagined from my reading. It would certainly be nice if I didn't have to add bimonthly appointments to my doctor appointment lineup, so I am hoping that'll be enough. It's hard to complain about a once a year appointment.
So, things are looking good. Radiation isn't going to be a walk in the park with my existing health problems, but I have a definite light at the end of the tunnel to keep me moving along. Thank you all for your continuing support. I'd like you all to think about an idea I had over the past couple of weeks that I will describe below.
When all of this is over, I would really like to get a big group of family and friends to go to the aquarium, natural history museum, or both over a few weeks, and I would further like to not have to be the organizer of it all. I have not been to either place since I was a little kid and I think this would be a great way to move out of a rough situation. I would need a wheelchair to last through the day, but I would be able to handle that concept I believe. I think it would be a lot of fun to get whole families in on it, kids and all, and if people drove separately some could leave earlier than others if they needed to do so. This could happen as a big family and friends arrangement, or we could set up a family day in one place and a friends day in the other. I am confident everyone would get along great regardless of which way we chose to do it. So, send me your comments with your thoughts on this idea. It's too early to figure in any dates because I don't know how long radiation goes or how whipped I will be on account of it, but that can happen once a few weeks have passed.
Posted by Andy at March 3, 2006 06:54 PM to the Health categoryaside from upcoming midterms, i should be able to attend any event. i would prefer not to be the organizer, since i know none of your friends, but will be more than happy to assist in any of the detail oriented planning. just not the inviting. so maybe one of your other friends would like to email me.... my email address is obviously posted here.
take it easy and i'm very pleased to read this,
h
Sounds like 1 year is to long? Your radiologist will have different ideas... mine does! With breast cancer, had 5 weeks of radiation.. 5 days a week..
Prepare for some discomfort, as it does toast the skin.. Like a very bad sunburn. I had creams and medication to take, if I got very tired. Good luck and keep us posted. Hugs Sara
I mean 1 year for a checkup, but that will depend on what the radiologist says as well. I don't have to see the urologist for a year though.
Posted by: Andy at March 4, 2006 11:13 AM