TheMosmillers.org

It's Official

We went in for blood-work and an appointment with urologist Craig Rogers today at 12:15. An hour or so later my blood was drawn and we got upstairs. After another three hours I got to see the doc, who had already scheduled me for surgery tomorrow morning. We finally got to the car at 5pm after more blood tests were completed, and I am writing this, exhausted, after basically just walking in the door.

The blood test results today confirmed that the tumor in my right testis is cancerous, though the type is yet to be determined officially. After an extremely brief examination, Dr. Rogers walked us through the steps of this process and outlined some details of the surgical procedure. An incision will be made above the affected region somewhere on the right of my groin and the cancerous testis will be removed through it. The procedure is often outpatient, but I think I'm going to be staying a day due to my CFS problems. I requested that consideration and I think it's likely to happen. If I stay over I'll probably be in the Marburg building, but I'm not certain of anything right now.

After the surgery, I'll go back in a week to have the dressing removed, and I won't know anything conclusive about whether or not the problem has spread until a month after the procedure, at which point I will have further blood-work to re-test the presence of the tumor marker(s). If my blood is clear, I'll just be observed. If not, I'll have to get chemotherapy and possibly other treatments and things unfold.

So, here's where I am...

The recovery rate for testicular cancer is about 99%, so that is good. That said, I am still extremely concerned about making a recovery from surgery, and further concerned by the prospect of treatments that, by their very nature, wear down the body even more. I am also angry that I had to go through a roughly five hour process today just to have my blood drawn and have a fairly brief consult. I feel I get absolutely no consideration as a person with CFS going through something like this, because no one at any point ever made any attempt to expedite the process, have me get the blood-work done at the same time as my other blood draws, or anything else. I further feel that this consult could have essentially taken place over the phone, legal requirements aside. The position in which I was placed today is much the same as requiring a wheelchair-bound patient to walk up 5 flights of steps to get testing done, then back down for the appointment, then back up again for more testing. I am as tired now I think as I was after the wedding I described on my blog in mid-October, and I have to go in for surgery tomorrow morning at 8:30am.

I was afraid I was going to just totally lose it coming out of Hopkins today, and I did briefly, but as I have found on countless prior occasions, God granted me just enough to get through. After my consultation I was sent back downstairs for what I assume amounts to pre-surgical blood testing, and my technician, a mostly bald, middle-aged African American man, was incredibly friendly and conversational at a time that it just had to happen. I would like to submit his name to the Hospital just to tell them how important it was, but I don't know if I can get that information or not. We talked a little about life, he brought up politics, and by the time I left I was much better equipped to handle the car ride home and the evening still ahead.

So, it's quarter of seven now as I wrap this up. Please pray for me. I am really scared about getting through the recovery from this surgery due to my energy level right now. When I get this tired I often get "regular sick" as I tend to call it, and that would be just horrendous at a time like this. Please pray that I'll get through it, and please also pray that this will be the end of it. Please also do what you can to keep me busy without a big energy requirement attached, as I have found it nigh-impossible to think about anything other than this since I received first word on Thursday. Somehow I am going to get through this surgery and come out shining. My will to live is not remotely reduced despite my physical condition, and I know I'll get just enough at each step to be ok.

I thank you all profusely for your comments over the past day or two. I have commented in return, but you might not realize that if you didn't check for yourself. You can call the house (410) 255-2308 for any information you need. Our answering machine is misleading and generic, but rest assured it is us. If you leave a number I'm sure my folks will get back to you as quickly as they are able.

Goodnight everybody.